So it's been a while. September, it looks like. Well, to be perfectly honest, not a lot has been happening. What with the constant stress of the threat of lay-offs, 2009 was pretty much a crap year, and I was quite glad to see the hind end of it come December 31, and don't let the door smack your ass on the way out, 2009.
Unfortunately, 2010 is not shaping up to be a whole lot better. The Chief got laid off a few weeks ago. The Big Bad Evil Corporation he works for decided that four guys in India could do his job a lot cheaper (but much less efficiently, apparently, although the Big Bad Evil Corporation is more concerned about bottom line than it is about efficiency, or about doing its patriotic duty by keeping our jobs in America, but that's another rant for another day), so it's adios muchachos, here's some severance benefits to tide you over for a bit, and have a nice life.
So, long story short, The Chief is here. Job searching. At home. In my office. All day.
Which is okay in a boy-it's-nice-to-get-to-spend-so-much-time-with-you sort of way, but somewhat less okay in a how-the-hell-are-we-going-to-pay-the-mortgage-when-severance-runs-out sort of way.
So I'm debating starting my own job hunt. While this mom-at-home gig I've had for the past fifteen years has been extremely rewarding, it doesn't pay awfully well. At least, not in ways that will enhance my bank account balance.
Hmm. I wonder if there are any knitting jobs out there…
Showing posts with label Cultural Insanity. Show all posts
Showing posts with label Cultural Insanity. Show all posts
Tuesday, February 23, 2010
Wednesday, February 25, 2009
Medication Madness: A Recovery Story
Gianna first asked me to write this back in December for the Recovery Page at her blog, Beyond Meds. It was posted there about a month ago, but I thought I'd put it here, too, since this blog is kind of about reclaiming one's life after being misdiagnosed with bipolar disorder and buying into the bullshit for a while before finally seeing the light.
In retrospect, I find it interesting, tragic, and infuriating that a gp and a psychiatrist were able to take an otherwise healthy woman suffering from situation-induced anxiety with a history of two brief periods of depression probably caused by as-yet undiagnosed hypothyroidism, and parlay that into a bipolar diagnosis and a life-sentence of medication-or-else.
I'd always had ups and downs. As a child, I'd been very anxious and very creative. As a writer I'd experienced intense writing highs when I could write for hours at a time and get by with very little sleep, and I'd also experienced intense creative lows where my mind seemed to be mired in muck and I couldn't eke out a single sentence for weeks on end. It never occurred to me to medicalize of pathologize that behavior...it was just part of me and who I was and how I operated.
In the fall of 2003, I went to my gp to get something to help me sleep. I'd taken Ambien before, when I had my creative periods and just couldn't get the wheels to stop turning long enough to fall asleep, and figured that was probably what I needed. At the time, we had a very difficult, anxious family situation going on—my best friend, who was in the process of getting a divorce, had moved in with us, and had promptly met and began an affair with my then-married brother-in-law, putting me smack in the middle between her and his bewildered wife. When I lay down to sleep, I couldn't stop thinking about what was going on and how to fix it. When I went to see my gp for help, my regular doctor wasn't there, and I had to see one of his partners. I was running on maybe three hours of sleep a night for the past week, and felt like I had way too much energy for having had that little amount of sleep.
The doctor asked me if I'd ever been depressed. I recalled two six-week periods, on in 1999 and one in 2001 when I had felt really down, unmotivated, and exhausted. Each of these periods of "depression" resolved on their own without medication. Sure, I'd felt horrible, but I was a young mother stuck at home with two small children and no car (let alone no time to write), which hadn't exactly been part of my career-oriented game plan. The doctor decided that I might be bipolar and asked me how I felt about seeing a psychiatrist. I was a bit surprised, but figured she probably knew what she was talking about and said I would make an appointment. She told me it would probably be a number of weeks or possibly months before I could get in to see anyone and that she would prescribe something for me to take to "bring me down" until I could get an appointment.
She gave me Zyprexa.
She also drew blood for a thyroid test, saying it was possible that my thyroid levels were high.
I managed to get an appointment with a psychiatrist six weeks out. In the meantime, I thought it wouldn't hurt to do some research on bipolar disorder. What I learned did not make me very happy. I read the DSM laundry list of symptoms of bipolar disorder, and realized that I had had all of those symptoms at one time or another. I began going through my journals and noting times when I had been down and times when I had been unusually creative or energetic. No pattern emerged, but there were an awful lot of ups and downs.
A week after my initial appointment with the gp, the thyroid results came back, and I learned that my thyroid levels were low and that I would need to start taking Synthroid. This was no surprise, really, as my mother had been diagnosed with the same thing years ago. But I have to wonder now just how long that had been going on, and whether it might have played a part in those two periods of "depression" I'd experienced a few years earlier.
The Zyprexa took a week or so to kick in, but it did seem to help. By the time I went to see the psychiatrist, I was sleeping better and my anxiety levels had come down somewhat (former best friend had moved in with brother-in-law, so I wasn't having to deal with that situation on a daily basis), though they were still a lot higher than normal. When I finally went to see the psychiatrist, I believed I had educated myself about bipolar disorder, and was fully prepared for him to diagnose me and medicate me. After a 45 minute interview, this man whom I had never met before and knew nothing about me other than my answers to his standardized questions, diagnosed me with bipolar II and told me that I would need to start medication immediately and that I would need to take it forever.
He did not once ask about anything that might be going on in my life.
To his credit, he wasn't too thrilled that the gp had prescribed Zyprexa. "We don't like Zyprexa," he told me, "but I'm sure she was just trying to help." He prescribed Depakote for the mood swings and trazodone (an older antidepressant with the helpful side effect of making one extremely sleepy) to help me sleep.
In my research, I had read that many writers and artists who had been diagnosed with bipolar disorder refused to take medication because it stopped them from being able to create. I told him I was a writer, and I was concerned about my ability to write while on medications. He gave me a condescending look and said, "Depakote won't kill your creativity." I took my prescriptions and dutifully made an appointment to see him again in four weeks.
At my next appointment, I told him I was still feeling a lot of anxiety, although I was sleeping better. He prescribed Lexapro, an antidepressant, because he said it would help with the anxiety and that he was concerned that untreated anxiety might lead to depression.
I swallowed all the propaganda, hook, line, and sinker. I became a student of my moods. When I felt good, I was "hypomanic" and needed to call him and ask him to increase my Depakote. When I felt lousy, I was obviously becoming "depressed" and needed to have more Lexapro. There was no room for normal, human emotions in my illness, for any emotion I felt might be the herald of disaster. My doctor told me on every appointment that the medications were "saving my life" and that if I ever stopped them I would ruin my life.
My Depakote dose went up and up and so did my weight. Within six months I had put on sixty pounds, and within a year I was suffering from terrible pain in my feet from plantar fasciitis, which the foot doctor whose advice I sought told me had been brought on by gaining so much weight so quickly. He prescribed orthotics and stretching exercises, but also told me that it was likely that I would not find a whole lot of relief until I lost some of the weight. I tried the orthotics, I tried the stretching, I tried to lose weight, and finally I submitted to painful cortisone shots, which brought some relief, but alas, only for a few weeks, and then the pain would return.
Pain became my constant companion. It was so bad that many evenings I was in tears. I couldn't be on my feet for more than ten minutes without excruciating pain. Housework had to be done in fits and starts. Grocery shopping became a nightmare, and I had to strategically plan shopping trips that would keep me in just one area of the store for the minimum amount of time. I missed out on taking the children places like the zoo, the science museum, and the amusement park because I just couldn't be on my feet for that long.
Soon after starting the Lexapro, my moods began to cycle rapidly. During my first year on Lexapro, I experienced three depressive episodes and two hypomanic episodes. My doctor took this as validation that being on medications was the right course, because obviously my illness was worsening, and it was a good thing we'd caught it before things really went off the rails.
It never occurred to me that the medications might be the cause of the mood swings.
As the doses of medication increased, my mind started to shut down. Where once I had possessed a rapier wit, now it was all I could do to get the right word out without stuttering. My hands shook and I couldn't do the fine needlework I'd always taken pride in. And worst of all, my verbal abilities disappeared. I couldn't write. I couldn't remember things. I couldn't even find the right words half the time. I also lost all interest in sex, and I found myself unable to care about anything. Life just drifted by, and nothing ever seemed to touch me. In fact, the only time I really felt anything was when my moods cycled up or down.
But I had to keep taking the medications, right? Because if I stopped, I'd "ruin my life", and I was damned lucky that we had caught this problem before things got really out of hand. A doctor had told me so, and he was Educated and Informed, so he had to know what he was talking about, right? After all, he was a professional psychiatrist—an expert on mood disorders--and a professor at a respected university, to boot. I could trust him...right? And after all, my mood swings had become much more frequent and much more severe in recent months. All proof to me that I was doing the right thing.
As time went on I became more and more drugged and disillusioned. I couldn't write anymore so my dreams of writing and publishing novels for a living went down the toilet. By the fall of 2004, over-medicated and overweight, the future no longer seemed bright and full of colour and energy. It looked cold and numb, the colour of ash. And I had pretty much resigned myself to the idea that this is my life now. I have bipolar disorder and I'm lucky to have a life at all.
I tried complaining to my psychiatrist about some of this, but although he listened, I do not think he ever really heard me. And he had an answer for everything:
"I'm concerned about the amount of weight I'm putting on," I told him at one appointment. "When do the risks of carrying around this extra weight outweigh the benefits of taking the medications?"
"You are taking the best medications we have available," he told me, and his manner made me feel like an ungrateful child asking for a second helping of dessert.
"What about going off the medications for a while and seeing what happens?" I persisted, aware that weight loss wasn't going to happen on Depakote—I'd already been trying, and was having no luck.
He gave me a severe look and said, "You are an intelligent woman. Your episodes have been more frequent during the last year, and you know that if you stop taking your medications, you will ruin your life."
Eventually, in the winter of 2005, after months of me pestering him at every visit, he finally agreed to let me try Lamictal. I was very excited at the prospect, because I had read that Lamictal was not as sedating as Depakote—I might actually be able to think and write while on this drug—and it was weight neutral, so I might be able to lose weight as well. I was instructed to cut my Depakote down over a few weeks from 2500 mg to 1000 mg, and then start the Lamictal, then taper the rest of the Depakote after I was up to 100 mg of Lamictal a day. Within three months, if all went well, I would be off the Depakote entirely.
Unfortunately for me, I developed the dreaded Rash, and was told to stop the Lamictal immediately. Cold turkey. I was on 100 mg at the time, and stopped as instructed. A week later I came down with the worst "flu" I'd ever had and was in bed for six weeks with the worst fatigue I had ever felt. I was so exhausted I could barely get off the couch to stagger to the bathroom. I didn't have the energy to make dinner or do laundry, or anything I normally did. My husband had to take over pretty much all the household chores as all I was capable of doing was lying on the couch sleeping 18-20 hours a day. At that time I'd never heard of Lamictal withdrawal, and my doctor had not mentioned anything about the risks or symptoms associated with stopping it so abruptly, and so I assumed I'd had a rotten bout of flu. I know better now.
So the Lamictal experiment had failed, but I was down to only 1000 mg of Depakote, and was beginning to be able to think a bit more clearly. My memory was better and I didn't feel like I was groping for the right words all the time. The shakes had mostly gone away, although I still couldn't do really fine needlework. And I was starting to care about things again. I felt so much better on the lower dose that I told my doctor I wanted to stay there for a while. He agreed.
The turning point came that spring when my husband suffered a severe heart attack. In a cold, numb daze, I dealt with it. I called the ambulance, I called the neighbor to take care of the kids, I drove (with my terrible sense of direction and fear of getting lost) into the big city to a hospital I'd never been to before, and I held it together. I didn't cry. I didn't feel much of anything, actually.
Fortunately, my husband survived. He had a catheterization procedure done, which he came through with flying colours, and was out of the hospital within three days. But I still couldn't feel anything. I couldn't even cry, and I knew that wasn't normal.
At that point, I decided that I'd had enough of being drugged numb. I was completely unable to respond to normal human emotion, and I began to fear that I was not able to respond to my children appropriately. When I told my doctor that I was concerned about the fact that this traumatic, life-changing event had occurred and that I had been unable to react to it, his response was, "Well, the medication protected you."
Yeah. Thanks ever so, doc.
That was my last visit to him. Without having a clue what I was doing, I tapered my medications down over the next month, and by the summer I was off of Depakote and Lexapro. I was still taking trazodone to help me sleep, because I still believed I had bipolar disorder, and that I needed to do everything in my power to stay stable. I embarked upon a program of healthy living—excellent nutrition, supplements, regular bedtimes with trazodone to make sure I got my sleep. I even gave up caffeine. I'd been a regular Diet Coke drinker for years, but I knew that caffeine could mess up my sleep, and I'd had it hammered into my brain for the last year and a half that proper sleep could be the difference between stability and a manic episode. When I was on the medications, caffeine was often the only thing that allowed me to see through the drug fog long enough to get the kids off to school in the mornings, but with the dulling effects of medication gone, I found that I didn't need caffeine any more. For exercise, I started a simple yoga routine because that was about the only thing I could think of that didn't involve impact that would hurt my feet. I found that I enjoyed yoga a lot, and this naturally led me to an interest in meditation, which I added on to the end of my yoga program.
The first week completely off meds was rough. My emotions were all over the map. But I refused to pathologize them. I told myself that I'd had everything deadened for the last year and a half, and that I had to become accustomed to feeling things again. I told myself that I had a year and a half of chemically suppressed emotion that I needed to deal with, so I let myself cry, I let myself feel whatever it was I needed to feel, and embraced the fact that I could feel at all. After that week, things eased up and I began to feel more like my old self.
I began to lose weight slowly, and the yoga had an unexpected benefit—even before I had lost much weight, the pain in my feet began to ease up (although it did not disappear entirely until I had lost thirty of the sixty pounds I'd put on). Soon I was able to go back to my usual activities, and even take short walks.
I was still taking trazodone, and I still believed that I had become that most dangerous of creatures, an Unmedicated Bipolar. Months went by and I was still unable to write. I was afraid that something, either the bipolar disorder or the medications, had damaged my mind, destroyed my creativity. I tried everything to bring it back, but nothing seemed to work. The ability to write seemed to be intact, but it didn't move me that way it once had, there was none of the sparkle I recalled, and I lacked the drive to do the one thing that I had once believed to be my life's purpose.
A couple of years passed. I was still taking trazodone, and I lived in constant fear that I was going to have an "episode" and not be able to control myself. Eventually, the fear got to me and I decided that, knowing how long it takes to see a psychiatrist, it might not be a bad idea to have one on board, "just in case." I found one not too far from my house, and went to see him. Even though I had been stable off medications for nearly three years, he wanted to put me back on medication. I told him I would consider it, but I also told him point blank that I refused to take anything that would make me gain weight or make me stupid. He named three medications—Abilify, Lamictal, and Trileptal. I told him about my past Lamictal problems (the rash, at least, not the withdrawal symptoms, as I still believed it had just been a nasty bout of flu), and he suggested that if we increased the dose much more slowly and without Depakote present that things might go better. He told me to research the medications he had suggested and we would discuss them next time.
However. In my research I came across Phil Dawdy's Furious Seasons, and Gianna's Beyond Meds, and after doing much reading and thinking, I decided that this new psychiatrist had a hell of a lot of nerve suggesting that I ought to be on medication when I'd been completely stable on just trazodone for nearly three years. And in fact, I decided that I didn't want to be on trazodone anymore either, because from what I'd been reading, it just might be responsible for my lack of enthusiasm for writing.
My trazodone taper was a lot smarter than the others. It took me about four months to go from 200 mg a day to nothing. I had headaches for a few days every time I lowered the dose, and I had a couple of weeks somewhere in the middle where I'd have scary flashes of suicidal thoughts. But I persisted, because during this time, I was reading recovery stories and looking into alternative mental health solutions, and realizing that drugs might well have been part of the problem rather than the solution.
In my reading, I also came across some information about the artificial sweetener Aspartame being implicated in mood disorders. When I thought back over my own history, I realized that my mood swings had started in college, soon after I'd turned to diet soda as a study aid. I'd never liked coffee or tea, and didn't want the calories in regular soda, so Diet Coke became my drug of choice. More importantly, those mood swings had stopped when I'd stopped drinking Diet Coke.
As I write this, I've been off mood stabilizers for over three and a half years, and off of trazodone for about six months. My enthusiasm for writing seems to be returning, and I feel better and more stable than I have in years. The mood swings that followed me through college and beyond are gone, and I've felt neither depression nor hypomania since stopping mood stabilizers and aspartame. I am incredibly grateful to Gianna and others who have shared their recovery stories on her site, because if I hadn't found this resource, I might well have listened to that second psychiatrist last year, and allowed him to frighten me back onto the medication merry-go-round.
I no longer live in fear that I am going to lose control or that the Bipolar Monster is going to rear its ugly head and ruin my life. I no longer believe that I have untreated bipolar disorder. I accept the fact that I had symptoms of bipolar disorder, but as more and more time passes with no recurrence of these symptoms, I become more and more convinced that these symptoms were caused by a toxic reaction to Aspartame, and have nothing to do with bipolar disorder.
For a while, I was pretty angry. Angry that drugs like Aspartame could be put into the food supply because they were supposed to be "safe". Angry that I could be diagnosed with a major mental illness so quickly and easily by someone who had never met me. Angry that the diagnostic criteria for this life sentence left no room for life-circumstances and that the doctors I saw never asked about anything beyond those narrow criteria. Angry that my doctors saw medications as the only treatment options available and refused to consider alternatives. And mostly angry at myself, that I bought into the whole thing in the first place, that I listened to doctors without questioning. That I bought into mainstream media perceptions. That I was a sheep. Baa...
But you can't stay angry forever, and my yoga practice has helped me to accept what happened and to make peace with it. I had to go there to get here, and I like where I am now. That which does not kill us can make us stronger...and perhaps wiser, if we are open to learning from it.
Today, I've lost about forty-five of the sixty pounds Depakote packed onto me, and my feet no longer hurt—I can now do some of the higher impact activities I used to enjoy. I'm starting to write again, and rather than feeling angry, I'm starting to feel like I had a pretty lucky escape.
Hopefully reading my story might help someone else start to think and to question...and maybe give them the inspiration to stage their own lucky escape.
In retrospect, I find it interesting, tragic, and infuriating that a gp and a psychiatrist were able to take an otherwise healthy woman suffering from situation-induced anxiety with a history of two brief periods of depression probably caused by as-yet undiagnosed hypothyroidism, and parlay that into a bipolar diagnosis and a life-sentence of medication-or-else.
I'd always had ups and downs. As a child, I'd been very anxious and very creative. As a writer I'd experienced intense writing highs when I could write for hours at a time and get by with very little sleep, and I'd also experienced intense creative lows where my mind seemed to be mired in muck and I couldn't eke out a single sentence for weeks on end. It never occurred to me to medicalize of pathologize that behavior...it was just part of me and who I was and how I operated.
In the fall of 2003, I went to my gp to get something to help me sleep. I'd taken Ambien before, when I had my creative periods and just couldn't get the wheels to stop turning long enough to fall asleep, and figured that was probably what I needed. At the time, we had a very difficult, anxious family situation going on—my best friend, who was in the process of getting a divorce, had moved in with us, and had promptly met and began an affair with my then-married brother-in-law, putting me smack in the middle between her and his bewildered wife. When I lay down to sleep, I couldn't stop thinking about what was going on and how to fix it. When I went to see my gp for help, my regular doctor wasn't there, and I had to see one of his partners. I was running on maybe three hours of sleep a night for the past week, and felt like I had way too much energy for having had that little amount of sleep.
The doctor asked me if I'd ever been depressed. I recalled two six-week periods, on in 1999 and one in 2001 when I had felt really down, unmotivated, and exhausted. Each of these periods of "depression" resolved on their own without medication. Sure, I'd felt horrible, but I was a young mother stuck at home with two small children and no car (let alone no time to write), which hadn't exactly been part of my career-oriented game plan. The doctor decided that I might be bipolar and asked me how I felt about seeing a psychiatrist. I was a bit surprised, but figured she probably knew what she was talking about and said I would make an appointment. She told me it would probably be a number of weeks or possibly months before I could get in to see anyone and that she would prescribe something for me to take to "bring me down" until I could get an appointment.
She gave me Zyprexa.
She also drew blood for a thyroid test, saying it was possible that my thyroid levels were high.
I managed to get an appointment with a psychiatrist six weeks out. In the meantime, I thought it wouldn't hurt to do some research on bipolar disorder. What I learned did not make me very happy. I read the DSM laundry list of symptoms of bipolar disorder, and realized that I had had all of those symptoms at one time or another. I began going through my journals and noting times when I had been down and times when I had been unusually creative or energetic. No pattern emerged, but there were an awful lot of ups and downs.
A week after my initial appointment with the gp, the thyroid results came back, and I learned that my thyroid levels were low and that I would need to start taking Synthroid. This was no surprise, really, as my mother had been diagnosed with the same thing years ago. But I have to wonder now just how long that had been going on, and whether it might have played a part in those two periods of "depression" I'd experienced a few years earlier.
The Zyprexa took a week or so to kick in, but it did seem to help. By the time I went to see the psychiatrist, I was sleeping better and my anxiety levels had come down somewhat (former best friend had moved in with brother-in-law, so I wasn't having to deal with that situation on a daily basis), though they were still a lot higher than normal. When I finally went to see the psychiatrist, I believed I had educated myself about bipolar disorder, and was fully prepared for him to diagnose me and medicate me. After a 45 minute interview, this man whom I had never met before and knew nothing about me other than my answers to his standardized questions, diagnosed me with bipolar II and told me that I would need to start medication immediately and that I would need to take it forever.
He did not once ask about anything that might be going on in my life.
To his credit, he wasn't too thrilled that the gp had prescribed Zyprexa. "We don't like Zyprexa," he told me, "but I'm sure she was just trying to help." He prescribed Depakote for the mood swings and trazodone (an older antidepressant with the helpful side effect of making one extremely sleepy) to help me sleep.
In my research, I had read that many writers and artists who had been diagnosed with bipolar disorder refused to take medication because it stopped them from being able to create. I told him I was a writer, and I was concerned about my ability to write while on medications. He gave me a condescending look and said, "Depakote won't kill your creativity." I took my prescriptions and dutifully made an appointment to see him again in four weeks.
At my next appointment, I told him I was still feeling a lot of anxiety, although I was sleeping better. He prescribed Lexapro, an antidepressant, because he said it would help with the anxiety and that he was concerned that untreated anxiety might lead to depression.
I swallowed all the propaganda, hook, line, and sinker. I became a student of my moods. When I felt good, I was "hypomanic" and needed to call him and ask him to increase my Depakote. When I felt lousy, I was obviously becoming "depressed" and needed to have more Lexapro. There was no room for normal, human emotions in my illness, for any emotion I felt might be the herald of disaster. My doctor told me on every appointment that the medications were "saving my life" and that if I ever stopped them I would ruin my life.
My Depakote dose went up and up and so did my weight. Within six months I had put on sixty pounds, and within a year I was suffering from terrible pain in my feet from plantar fasciitis, which the foot doctor whose advice I sought told me had been brought on by gaining so much weight so quickly. He prescribed orthotics and stretching exercises, but also told me that it was likely that I would not find a whole lot of relief until I lost some of the weight. I tried the orthotics, I tried the stretching, I tried to lose weight, and finally I submitted to painful cortisone shots, which brought some relief, but alas, only for a few weeks, and then the pain would return.
Pain became my constant companion. It was so bad that many evenings I was in tears. I couldn't be on my feet for more than ten minutes without excruciating pain. Housework had to be done in fits and starts. Grocery shopping became a nightmare, and I had to strategically plan shopping trips that would keep me in just one area of the store for the minimum amount of time. I missed out on taking the children places like the zoo, the science museum, and the amusement park because I just couldn't be on my feet for that long.
Soon after starting the Lexapro, my moods began to cycle rapidly. During my first year on Lexapro, I experienced three depressive episodes and two hypomanic episodes. My doctor took this as validation that being on medications was the right course, because obviously my illness was worsening, and it was a good thing we'd caught it before things really went off the rails.
It never occurred to me that the medications might be the cause of the mood swings.
As the doses of medication increased, my mind started to shut down. Where once I had possessed a rapier wit, now it was all I could do to get the right word out without stuttering. My hands shook and I couldn't do the fine needlework I'd always taken pride in. And worst of all, my verbal abilities disappeared. I couldn't write. I couldn't remember things. I couldn't even find the right words half the time. I also lost all interest in sex, and I found myself unable to care about anything. Life just drifted by, and nothing ever seemed to touch me. In fact, the only time I really felt anything was when my moods cycled up or down.
But I had to keep taking the medications, right? Because if I stopped, I'd "ruin my life", and I was damned lucky that we had caught this problem before things got really out of hand. A doctor had told me so, and he was Educated and Informed, so he had to know what he was talking about, right? After all, he was a professional psychiatrist—an expert on mood disorders--and a professor at a respected university, to boot. I could trust him...right? And after all, my mood swings had become much more frequent and much more severe in recent months. All proof to me that I was doing the right thing.
As time went on I became more and more drugged and disillusioned. I couldn't write anymore so my dreams of writing and publishing novels for a living went down the toilet. By the fall of 2004, over-medicated and overweight, the future no longer seemed bright and full of colour and energy. It looked cold and numb, the colour of ash. And I had pretty much resigned myself to the idea that this is my life now. I have bipolar disorder and I'm lucky to have a life at all.
I tried complaining to my psychiatrist about some of this, but although he listened, I do not think he ever really heard me. And he had an answer for everything:
"I'm concerned about the amount of weight I'm putting on," I told him at one appointment. "When do the risks of carrying around this extra weight outweigh the benefits of taking the medications?"
"You are taking the best medications we have available," he told me, and his manner made me feel like an ungrateful child asking for a second helping of dessert.
"What about going off the medications for a while and seeing what happens?" I persisted, aware that weight loss wasn't going to happen on Depakote—I'd already been trying, and was having no luck.
He gave me a severe look and said, "You are an intelligent woman. Your episodes have been more frequent during the last year, and you know that if you stop taking your medications, you will ruin your life."
Eventually, in the winter of 2005, after months of me pestering him at every visit, he finally agreed to let me try Lamictal. I was very excited at the prospect, because I had read that Lamictal was not as sedating as Depakote—I might actually be able to think and write while on this drug—and it was weight neutral, so I might be able to lose weight as well. I was instructed to cut my Depakote down over a few weeks from 2500 mg to 1000 mg, and then start the Lamictal, then taper the rest of the Depakote after I was up to 100 mg of Lamictal a day. Within three months, if all went well, I would be off the Depakote entirely.
Unfortunately for me, I developed the dreaded Rash, and was told to stop the Lamictal immediately. Cold turkey. I was on 100 mg at the time, and stopped as instructed. A week later I came down with the worst "flu" I'd ever had and was in bed for six weeks with the worst fatigue I had ever felt. I was so exhausted I could barely get off the couch to stagger to the bathroom. I didn't have the energy to make dinner or do laundry, or anything I normally did. My husband had to take over pretty much all the household chores as all I was capable of doing was lying on the couch sleeping 18-20 hours a day. At that time I'd never heard of Lamictal withdrawal, and my doctor had not mentioned anything about the risks or symptoms associated with stopping it so abruptly, and so I assumed I'd had a rotten bout of flu. I know better now.
So the Lamictal experiment had failed, but I was down to only 1000 mg of Depakote, and was beginning to be able to think a bit more clearly. My memory was better and I didn't feel like I was groping for the right words all the time. The shakes had mostly gone away, although I still couldn't do really fine needlework. And I was starting to care about things again. I felt so much better on the lower dose that I told my doctor I wanted to stay there for a while. He agreed.
The turning point came that spring when my husband suffered a severe heart attack. In a cold, numb daze, I dealt with it. I called the ambulance, I called the neighbor to take care of the kids, I drove (with my terrible sense of direction and fear of getting lost) into the big city to a hospital I'd never been to before, and I held it together. I didn't cry. I didn't feel much of anything, actually.
Fortunately, my husband survived. He had a catheterization procedure done, which he came through with flying colours, and was out of the hospital within three days. But I still couldn't feel anything. I couldn't even cry, and I knew that wasn't normal.
At that point, I decided that I'd had enough of being drugged numb. I was completely unable to respond to normal human emotion, and I began to fear that I was not able to respond to my children appropriately. When I told my doctor that I was concerned about the fact that this traumatic, life-changing event had occurred and that I had been unable to react to it, his response was, "Well, the medication protected you."
Yeah. Thanks ever so, doc.
That was my last visit to him. Without having a clue what I was doing, I tapered my medications down over the next month, and by the summer I was off of Depakote and Lexapro. I was still taking trazodone to help me sleep, because I still believed I had bipolar disorder, and that I needed to do everything in my power to stay stable. I embarked upon a program of healthy living—excellent nutrition, supplements, regular bedtimes with trazodone to make sure I got my sleep. I even gave up caffeine. I'd been a regular Diet Coke drinker for years, but I knew that caffeine could mess up my sleep, and I'd had it hammered into my brain for the last year and a half that proper sleep could be the difference between stability and a manic episode. When I was on the medications, caffeine was often the only thing that allowed me to see through the drug fog long enough to get the kids off to school in the mornings, but with the dulling effects of medication gone, I found that I didn't need caffeine any more. For exercise, I started a simple yoga routine because that was about the only thing I could think of that didn't involve impact that would hurt my feet. I found that I enjoyed yoga a lot, and this naturally led me to an interest in meditation, which I added on to the end of my yoga program.
The first week completely off meds was rough. My emotions were all over the map. But I refused to pathologize them. I told myself that I'd had everything deadened for the last year and a half, and that I had to become accustomed to feeling things again. I told myself that I had a year and a half of chemically suppressed emotion that I needed to deal with, so I let myself cry, I let myself feel whatever it was I needed to feel, and embraced the fact that I could feel at all. After that week, things eased up and I began to feel more like my old self.
I began to lose weight slowly, and the yoga had an unexpected benefit—even before I had lost much weight, the pain in my feet began to ease up (although it did not disappear entirely until I had lost thirty of the sixty pounds I'd put on). Soon I was able to go back to my usual activities, and even take short walks.
I was still taking trazodone, and I still believed that I had become that most dangerous of creatures, an Unmedicated Bipolar. Months went by and I was still unable to write. I was afraid that something, either the bipolar disorder or the medications, had damaged my mind, destroyed my creativity. I tried everything to bring it back, but nothing seemed to work. The ability to write seemed to be intact, but it didn't move me that way it once had, there was none of the sparkle I recalled, and I lacked the drive to do the one thing that I had once believed to be my life's purpose.
A couple of years passed. I was still taking trazodone, and I lived in constant fear that I was going to have an "episode" and not be able to control myself. Eventually, the fear got to me and I decided that, knowing how long it takes to see a psychiatrist, it might not be a bad idea to have one on board, "just in case." I found one not too far from my house, and went to see him. Even though I had been stable off medications for nearly three years, he wanted to put me back on medication. I told him I would consider it, but I also told him point blank that I refused to take anything that would make me gain weight or make me stupid. He named three medications—Abilify, Lamictal, and Trileptal. I told him about my past Lamictal problems (the rash, at least, not the withdrawal symptoms, as I still believed it had just been a nasty bout of flu), and he suggested that if we increased the dose much more slowly and without Depakote present that things might go better. He told me to research the medications he had suggested and we would discuss them next time.
However. In my research I came across Phil Dawdy's Furious Seasons, and Gianna's Beyond Meds, and after doing much reading and thinking, I decided that this new psychiatrist had a hell of a lot of nerve suggesting that I ought to be on medication when I'd been completely stable on just trazodone for nearly three years. And in fact, I decided that I didn't want to be on trazodone anymore either, because from what I'd been reading, it just might be responsible for my lack of enthusiasm for writing.
My trazodone taper was a lot smarter than the others. It took me about four months to go from 200 mg a day to nothing. I had headaches for a few days every time I lowered the dose, and I had a couple of weeks somewhere in the middle where I'd have scary flashes of suicidal thoughts. But I persisted, because during this time, I was reading recovery stories and looking into alternative mental health solutions, and realizing that drugs might well have been part of the problem rather than the solution.
In my reading, I also came across some information about the artificial sweetener Aspartame being implicated in mood disorders. When I thought back over my own history, I realized that my mood swings had started in college, soon after I'd turned to diet soda as a study aid. I'd never liked coffee or tea, and didn't want the calories in regular soda, so Diet Coke became my drug of choice. More importantly, those mood swings had stopped when I'd stopped drinking Diet Coke.
As I write this, I've been off mood stabilizers for over three and a half years, and off of trazodone for about six months. My enthusiasm for writing seems to be returning, and I feel better and more stable than I have in years. The mood swings that followed me through college and beyond are gone, and I've felt neither depression nor hypomania since stopping mood stabilizers and aspartame. I am incredibly grateful to Gianna and others who have shared their recovery stories on her site, because if I hadn't found this resource, I might well have listened to that second psychiatrist last year, and allowed him to frighten me back onto the medication merry-go-round.
I no longer live in fear that I am going to lose control or that the Bipolar Monster is going to rear its ugly head and ruin my life. I no longer believe that I have untreated bipolar disorder. I accept the fact that I had symptoms of bipolar disorder, but as more and more time passes with no recurrence of these symptoms, I become more and more convinced that these symptoms were caused by a toxic reaction to Aspartame, and have nothing to do with bipolar disorder.
For a while, I was pretty angry. Angry that drugs like Aspartame could be put into the food supply because they were supposed to be "safe". Angry that I could be diagnosed with a major mental illness so quickly and easily by someone who had never met me. Angry that the diagnostic criteria for this life sentence left no room for life-circumstances and that the doctors I saw never asked about anything beyond those narrow criteria. Angry that my doctors saw medications as the only treatment options available and refused to consider alternatives. And mostly angry at myself, that I bought into the whole thing in the first place, that I listened to doctors without questioning. That I bought into mainstream media perceptions. That I was a sheep. Baa...
But you can't stay angry forever, and my yoga practice has helped me to accept what happened and to make peace with it. I had to go there to get here, and I like where I am now. That which does not kill us can make us stronger...and perhaps wiser, if we are open to learning from it.
Today, I've lost about forty-five of the sixty pounds Depakote packed onto me, and my feet no longer hurt—I can now do some of the higher impact activities I used to enjoy. I'm starting to write again, and rather than feeling angry, I'm starting to feel like I had a pretty lucky escape.
Hopefully reading my story might help someone else start to think and to question...and maybe give them the inspiration to stage their own lucky escape.
Wednesday, December 31, 2008
The Yearly Reckoning...Not!
New Year's Eve once more, and I find myself not at all reflective or seeking closure of the year just past. Unusual for me, but at the moment, it seems like such an arbitrary thing, to say this is the last day of the year and so you must reflect, sum up, list accomplishments, and set goals for the coming year.
It seems so very contrived...life is a dynamic process, and it doesn't always fit into those nice, neat little boxes that you can stack in alphabetized (or colour-coded, for the more visual among us) rows.
So this year I'm going to do something I never do...I'm going to poo-poo the Yearly Reckoning. No lists of accomplishments (I swear that's a lingering side effect of spending twelve years in academia with that whole publish-or-perish imperative), no goal setting, no angst about how little I've actually done. Instead, there will merely be a nod to the new calendar, and a desperate attempt to remember to write "2009" on my checks...
Writing Prompt: Do you have an end of the year ritual? What is it? Why is it important to you? If you don't have one, why not?
It seems so very contrived...life is a dynamic process, and it doesn't always fit into those nice, neat little boxes that you can stack in alphabetized (or colour-coded, for the more visual among us) rows.
So this year I'm going to do something I never do...I'm going to poo-poo the Yearly Reckoning. No lists of accomplishments (I swear that's a lingering side effect of spending twelve years in academia with that whole publish-or-perish imperative), no goal setting, no angst about how little I've actually done. Instead, there will merely be a nod to the new calendar, and a desperate attempt to remember to write "2009" on my checks...
Writing Prompt: Do you have an end of the year ritual? What is it? Why is it important to you? If you don't have one, why not?
Monday, August 4, 2008
Pandora's Box
"Instead of elders, we now have elected politicians who speak with corrupt and self-serving voices; instead of fragrant local wisdom we have homogeneous civil law and institutionalized religion to guide us." --Caitlin Matthews, "The Celtic Spirit"
I often find myself yearning for a different time, a simpler time, when we lived in harmony with the turning of the earth. Although technology has done much to improve our lives, in many way it has also impoverished us. The society we live in is driven by the holy dollar, and there seems to be very little room here for the idea of the "common good".
Our media-driven culture teaches us from infancy that the most important people in our world are those who have everything and look good...not those who have the wisdom to guide us and have lived in the world long enough to speak from experience.
We live in a world where human connections are transient, fragile, and even unnecessary. Families are separated by oceans and divorce is easy with no real consequences.
I'm not saying the world was perfect before all this technology came along. I think that in many ways it was a harder, grimmer place. But I think there was much more of a sense of family and a sense of community.
We may have gained a lot in our technological achievements, but I think we have lost a lot, too. We have an entire nation full of lost people with empty lives, many of them popping antidepressant medications because they know that something is wrong...they're just not sure what.
I'm not sure what the answers are, though. All our technology is like Pandora's Box, and there's no stuffing it back inside and slamming the lid shut once it's out there. Perhaps part of the answer lies in listening to what's really in our hearts and stop letting other people tell us what we think.
Writing Prompt: What does your heart tell you about how to live an authentic life? What kind of life resonates with your inner self?
I often find myself yearning for a different time, a simpler time, when we lived in harmony with the turning of the earth. Although technology has done much to improve our lives, in many way it has also impoverished us. The society we live in is driven by the holy dollar, and there seems to be very little room here for the idea of the "common good".
Our media-driven culture teaches us from infancy that the most important people in our world are those who have everything and look good...not those who have the wisdom to guide us and have lived in the world long enough to speak from experience.
We live in a world where human connections are transient, fragile, and even unnecessary. Families are separated by oceans and divorce is easy with no real consequences.
I'm not saying the world was perfect before all this technology came along. I think that in many ways it was a harder, grimmer place. But I think there was much more of a sense of family and a sense of community.
We may have gained a lot in our technological achievements, but I think we have lost a lot, too. We have an entire nation full of lost people with empty lives, many of them popping antidepressant medications because they know that something is wrong...they're just not sure what.
I'm not sure what the answers are, though. All our technology is like Pandora's Box, and there's no stuffing it back inside and slamming the lid shut once it's out there. Perhaps part of the answer lies in listening to what's really in our hearts and stop letting other people tell us what we think.
Writing Prompt: What does your heart tell you about how to live an authentic life? What kind of life resonates with your inner self?
Tuesday, July 15, 2008
Fitting In...Or Not
Ever since I was a little kid, I've felt like I was on the outside looking in. While I was growing up, much of what the people around me felt was important--the "right" clothes, the "right" hair, being part of the "right" group--all bewildered me no end, and still does. I find it very hard to relate to this culture's value system, and now, as an adult, I have realized that I will probably never find a place where I really fit in. And I have to wonder if perhaps this is the source of the anxiety that has dogged me as far back as I can remember.
Oh, I've found a few like-minded travelers in my journey. My husband, for one, and a few dear friends that have come and gone through the years, but for the most part, people and what they want out of life are so hard for me to understand.
I often wonder why this is so. Is it part of whatever anomaly made me chemically sensitive and prone to mood swings? Is it because of my experiences of alienation as a child, having been brought to America and dumped into a world where everything that was familiar to me was gone? Is it because of the way I was raised? But my brother doesn't seem to have had any problems taking this culture's value system to heart.
Saying I don't belong here, of course, begs the question, well, where do you think you would fit in? Honestly, I don't know. I often think that perhaps I would do better in a place (or perhaps a time!) where people live in tune with the rhythms of the earth. Where time moves slowly through the turning of the seasons, and my days would be set out according to the seasons' demands rather than the siren song of the holy dollar.
I guess the best I can do is try to find peace within myself...but I find it sad that I have never found my "herd", never felt like I truly belonged.
Although I must note that since I started blogging, I seem to have found more individuals who think like me than I have ever found in real life!
Writing Prompt: Belonging seems to be an important human need. Where do you think you belong? Are you content with where you are now, or do you find yourself wishing you belonged somewhere or somewhen else? What are the consequences to you of not feeling a sense of belonging?
Oh, I've found a few like-minded travelers in my journey. My husband, for one, and a few dear friends that have come and gone through the years, but for the most part, people and what they want out of life are so hard for me to understand.
I often wonder why this is so. Is it part of whatever anomaly made me chemically sensitive and prone to mood swings? Is it because of my experiences of alienation as a child, having been brought to America and dumped into a world where everything that was familiar to me was gone? Is it because of the way I was raised? But my brother doesn't seem to have had any problems taking this culture's value system to heart.
Saying I don't belong here, of course, begs the question, well, where do you think you would fit in? Honestly, I don't know. I often think that perhaps I would do better in a place (or perhaps a time!) where people live in tune with the rhythms of the earth. Where time moves slowly through the turning of the seasons, and my days would be set out according to the seasons' demands rather than the siren song of the holy dollar.
I guess the best I can do is try to find peace within myself...but I find it sad that I have never found my "herd", never felt like I truly belonged.
Although I must note that since I started blogging, I seem to have found more individuals who think like me than I have ever found in real life!
Writing Prompt: Belonging seems to be an important human need. Where do you think you belong? Are you content with where you are now, or do you find yourself wishing you belonged somewhere or somewhen else? What are the consequences to you of not feeling a sense of belonging?
Sunday, July 6, 2008
If it Ain't Normal, Drug It!
The range of behaviors society is willing to call "normal" seems to be narrowing at a rather alarming rate. Behaviors that only twenty years ago were considered part of the incredible diversity of human expression are now considered pathological, and we are encouraged (every night during numerous television commercials sponsored by Big Pharma) to seek help and take powerful medications (whose actions on the brain and long-term effects are only vaguely understood) to control our symptoms.
When I look at the sweeping changes the Age of Technology has wrought in our society just in the past twenty years or so, I have to ask myself, is it any wonder that some of us just can't deal with our environment? Our genetic heritage has us hard-wired to be running around outside in the sunlight, foraging and hunting in order to feed ourselves, not slumped in front of a computer or a television screen under artificial lights eating processed chemical cocktails marketed as food day after day. But instead of asking what we can do to make the environment more healthy?, we ask what is wrong with these people? and medicate them so that they might better fit society's ever-tightening definition of "normal".
I'm thinking about something Furious Seasons reported on a while back about workplaces offering ADHD screening for their employees. And I'm thinking about antipsychotics being used for "social phobias" including fear of public speaking. And I'm thinking about the questionnaire I got on depression the last time I went to my GP's office for a thyroid check.
This trend to medicalize and pathologize every emotional condition that deviates even slightly from the norm worries me. I foresee a grim future in which all that is unique and brilliant and different in a person, all that sets us apart from each other, will be drugged out of us so that we better fit in the nice little boxes society uses to classify and control us.
Brave New World, anyone?
Writing Prompt: When I was about fourteen, I refused to grow up to be anything like my parents. I thought they were dull and boring, and I told them so (my mother has never let me forget this!). I wanted lights and music and excitement, and I couldn't figure out what was so great about a weekend spent sewing and reading and gardening. The Box People, I called them, all fitting so nicely into their middle-class suburban boxes. It's easy to label people when you're looking at them from the outside in. What labels have you carried? Do they tell the whole story? Why or why not? What labels would you give yourself?
When I look at the sweeping changes the Age of Technology has wrought in our society just in the past twenty years or so, I have to ask myself, is it any wonder that some of us just can't deal with our environment? Our genetic heritage has us hard-wired to be running around outside in the sunlight, foraging and hunting in order to feed ourselves, not slumped in front of a computer or a television screen under artificial lights eating processed chemical cocktails marketed as food day after day. But instead of asking what we can do to make the environment more healthy?, we ask what is wrong with these people? and medicate them so that they might better fit society's ever-tightening definition of "normal".
I'm thinking about something Furious Seasons reported on a while back about workplaces offering ADHD screening for their employees. And I'm thinking about antipsychotics being used for "social phobias" including fear of public speaking. And I'm thinking about the questionnaire I got on depression the last time I went to my GP's office for a thyroid check.
This trend to medicalize and pathologize every emotional condition that deviates even slightly from the norm worries me. I foresee a grim future in which all that is unique and brilliant and different in a person, all that sets us apart from each other, will be drugged out of us so that we better fit in the nice little boxes society uses to classify and control us.
Brave New World, anyone?
Writing Prompt: When I was about fourteen, I refused to grow up to be anything like my parents. I thought they were dull and boring, and I told them so (my mother has never let me forget this!). I wanted lights and music and excitement, and I couldn't figure out what was so great about a weekend spent sewing and reading and gardening. The Box People, I called them, all fitting so nicely into their middle-class suburban boxes. It's easy to label people when you're looking at them from the outside in. What labels have you carried? Do they tell the whole story? Why or why not? What labels would you give yourself?
Monday, June 23, 2008
You Are What You Eat
Naturalgal has been running a series on foods that are healthy and foods to avoid. Reading her work and talking with my psychiatrist the other day got me thinking...
I find it interesting that my psychiatrist has never asked me about my diet. Nor does he have any interest in which supplements I am taking. Now, admittedly I'm not taking anything exotic, but so many substances that are marketed as "supplements" have the potential to cause harm or interact with psych meds that I find it curious that he does not ask.
It strikes me that part of the reason most psychiatrists don't want to look too closely at diet is that the typical western diet is so bad for you that for most people, eating healthier would mean a huge lifestyle change. And let's face it, it's easier to get people to take a pill every day than it is to get them to change their habits.
But all of the brain chemicals involved in psychiatry's pet theory of chemical imbalance--namely the neurotransmitters like serotonin and dopamine--are made by the body from the materials it has at hand, meaning whatever has gone into the mouth recently. And so it makes sense to me (although I am not a biochemist or a nutritionist) that if you are giving your body junk for building blocks, the quality (and quantity) of the things it can make from those building blocks may not be optimal.
Looking at all the junk that's out there on the shelves at the grocery store, it amazes me that the average human lifespan keeps increasing. Our bodies are extremely resilient, and they'll keep running for a long time, even if we do fill them with crap. But damage is occurring whether we notice it or not.
Maybe if our bodies just balked and stop performing when we ate junk--like a car with a gas tank full of water--then we'd all be a lot more mindful about what we put in our mouths.
Writing Prompt: While our bodies need good food to run optimally, our minds/souls/spirits also need to be nourished. What things do you do to nourish your spirit and keep it healthy? Could you do more? Are there things you'd like to try but haven't? What things get in the way of nourishing yourself?
I find it interesting that my psychiatrist has never asked me about my diet. Nor does he have any interest in which supplements I am taking. Now, admittedly I'm not taking anything exotic, but so many substances that are marketed as "supplements" have the potential to cause harm or interact with psych meds that I find it curious that he does not ask.
It strikes me that part of the reason most psychiatrists don't want to look too closely at diet is that the typical western diet is so bad for you that for most people, eating healthier would mean a huge lifestyle change. And let's face it, it's easier to get people to take a pill every day than it is to get them to change their habits.
But all of the brain chemicals involved in psychiatry's pet theory of chemical imbalance--namely the neurotransmitters like serotonin and dopamine--are made by the body from the materials it has at hand, meaning whatever has gone into the mouth recently. And so it makes sense to me (although I am not a biochemist or a nutritionist) that if you are giving your body junk for building blocks, the quality (and quantity) of the things it can make from those building blocks may not be optimal.
Looking at all the junk that's out there on the shelves at the grocery store, it amazes me that the average human lifespan keeps increasing. Our bodies are extremely resilient, and they'll keep running for a long time, even if we do fill them with crap. But damage is occurring whether we notice it or not.
Maybe if our bodies just balked and stop performing when we ate junk--like a car with a gas tank full of water--then we'd all be a lot more mindful about what we put in our mouths.
Writing Prompt: While our bodies need good food to run optimally, our minds/souls/spirits also need to be nourished. What things do you do to nourish your spirit and keep it healthy? Could you do more? Are there things you'd like to try but haven't? What things get in the way of nourishing yourself?
Saturday, June 21, 2008
Sensory Overload
I have been pondering silence lately. Silence and peace.
Silence is extremely important to me. I can't stand a lot of noise around me. I don't have television on, or the radio, or even music, most of the time. Sometimes I like it, but mostly I find it irritating. I even have my computer's sound muted because the constant blipping and beeping drives me bats.
It's the same with visual input. I can't watch movies or videos with a lot of fast cuts, and I find those new billboards that change pictures every few seconds extremely irritating and distracting. I guess I don't deal well with sensory overload.
Even artificial smells irritate me, particularly strong perfume. I can't stand scented soaps, scented shampoos, scented laundry products...all those clashing smells. And I can't stand next to some heavily perfumed person in an elevator.
It makes me wonder if there's some sort of connection between our noisy, flashing, smelly, overstimulating modern environment and some of the mental health issues many of us deal with. Particularly anxiety and depression.
Writing Prompt: What is the most irritating environment you have ever found yourself in? What was the most restful environment? What sort of place would be the perfect environment for you--a place in which you feel you would function your best?
Silence is extremely important to me. I can't stand a lot of noise around me. I don't have television on, or the radio, or even music, most of the time. Sometimes I like it, but mostly I find it irritating. I even have my computer's sound muted because the constant blipping and beeping drives me bats.
It's the same with visual input. I can't watch movies or videos with a lot of fast cuts, and I find those new billboards that change pictures every few seconds extremely irritating and distracting. I guess I don't deal well with sensory overload.
Even artificial smells irritate me, particularly strong perfume. I can't stand scented soaps, scented shampoos, scented laundry products...all those clashing smells. And I can't stand next to some heavily perfumed person in an elevator.
It makes me wonder if there's some sort of connection between our noisy, flashing, smelly, overstimulating modern environment and some of the mental health issues many of us deal with. Particularly anxiety and depression.
Writing Prompt: What is the most irritating environment you have ever found yourself in? What was the most restful environment? What sort of place would be the perfect environment for you--a place in which you feel you would function your best?
Tuesday, June 3, 2008
On Kindness
I was very sad to see that Gianna at Beyond Meds will not be blogging any longer due to cruel comments left on her blog. I cannot understand what drives some people to behave as badly as these anonymous commenters have. All I can do is shake my head and wonder at the state of this world...and ask myself WTF I was thinking, bringing children into it.
Years ago I read something about thinking before you speak, and it touched me. I cannot recall where I read it, or who wrote it, but I wrote it out on a notecard and stuck it on my fridge for my kids to read when they need a reminder.
We could all do worse than to follow its advice:
Ask yourself before you speak (or comment on someone's blog):
Is this true?
Is it kind?
Is it necessary?
Years ago I read something about thinking before you speak, and it touched me. I cannot recall where I read it, or who wrote it, but I wrote it out on a notecard and stuck it on my fridge for my kids to read when they need a reminder.
We could all do worse than to follow its advice:
Ask yourself before you speak (or comment on someone's blog):
Is this true?
Is it kind?
Is it necessary?
Monday, June 2, 2008
Thoughts on Growing Up Bipolar
There have been many responses to Newsweek's recent article, Growing Up Bipolar in many of the blogs I read over the last couple of weeks. I wasn't going to comment on this, as much of what I have to say on the subject has already been said extremely eloquently by thememoryartist.
However, I do have a few thoughts on the subject...and I'm not looking for a fight here, I'm just wondering out loud...as it were...
The subject of the article, a ten-year-old boy named Max, was diagnosed with bipolar disorder at the tender age of two, and has since been on 38 different meds. The thing that struck me the most about this article was the part where Max said, "I don't have any control."
How many children who are growing up on psych meds grow up with the idea that they are not able to control their emotions...and how damaging is that belief? It strikes me that it may be a self-fulfilling prophecy.
I wonder how many of these children manage to achieve any sort of emotional development whatsoever, when the very emotions they need to learn to deal with are dulled and blunted by the medications. Part of growing up is learning how to deal with one's emotions in a reasonable, intelligent manner. But if you've never been allowed to have an authentic human emotional experience, how can you be expected to have any level of emotional maturity at all?
What happens when these children, some of whom have surely been wrongly diagnosed reach the age of majority and say, "Screw you and your pills, I'm done."
Once you stop the meds, your emotional life comes back full blast. I know I had a rough time coming off my bipolar meds, and I did it at the age of 40, and had been on them for less than two years. My ability to handle emotions was already developed and in place.
I wonder how damaged these poor kids are going to be when they finally see the world without psychotropic blinders...and how much therapy they are going to need in order to live comfortably with their newfound humanity. Certainly their lives are going to become far more complex once those layers of emotional experience are added back in. And the skills needed to deal with those emotions won't be there because they've never been needed--the medication has done all the controlling.
And don't even get me started on the brain damage aspect. These medications can cause detrimental changes in a fully developed adult brain...how much damage can they do to a young, developing brain?
Nobody knows.
But I imagine we're going to find out as the current generation of "bipolar" children reaches the age where medical decisions such as whether or not to continue taking these medications become theirs and theirs alone.
However, I do have a few thoughts on the subject...and I'm not looking for a fight here, I'm just wondering out loud...as it were...
The subject of the article, a ten-year-old boy named Max, was diagnosed with bipolar disorder at the tender age of two, and has since been on 38 different meds. The thing that struck me the most about this article was the part where Max said, "I don't have any control."
How many children who are growing up on psych meds grow up with the idea that they are not able to control their emotions...and how damaging is that belief? It strikes me that it may be a self-fulfilling prophecy.
I wonder how many of these children manage to achieve any sort of emotional development whatsoever, when the very emotions they need to learn to deal with are dulled and blunted by the medications. Part of growing up is learning how to deal with one's emotions in a reasonable, intelligent manner. But if you've never been allowed to have an authentic human emotional experience, how can you be expected to have any level of emotional maturity at all?
What happens when these children, some of whom have surely been wrongly diagnosed reach the age of majority and say, "Screw you and your pills, I'm done."
Once you stop the meds, your emotional life comes back full blast. I know I had a rough time coming off my bipolar meds, and I did it at the age of 40, and had been on them for less than two years. My ability to handle emotions was already developed and in place.
I wonder how damaged these poor kids are going to be when they finally see the world without psychotropic blinders...and how much therapy they are going to need in order to live comfortably with their newfound humanity. Certainly their lives are going to become far more complex once those layers of emotional experience are added back in. And the skills needed to deal with those emotions won't be there because they've never been needed--the medication has done all the controlling.
And don't even get me started on the brain damage aspect. These medications can cause detrimental changes in a fully developed adult brain...how much damage can they do to a young, developing brain?
Nobody knows.
But I imagine we're going to find out as the current generation of "bipolar" children reaches the age where medical decisions such as whether or not to continue taking these medications become theirs and theirs alone.
Thursday, May 8, 2008
Nervous? Try An Antipsychotic...
Furious Seasons reports today on problems with the antipsychotic drug Seroquel , which is soon to be approved for treating depression and anxiety. Last year, Furious Seasons reported that Seroquel has been studied as a "treatment" for "social phobias." Of which, fear of public speaking is apparently one.
I cannot believe that any responsible doctor would prescribe an antipsychotic to people who are exhibiting what is a completely normal fear of looking ridiculous in public. Given how much importance is attached to appearance and performance in this culture, of course people are going to worry about looking stupid in front of their peers. And let's face it, public speaking is one of those activities that carries with it the very real potential for Embarrassment and Humiliation.
Seroquel is a powerful drug and the list of possible side effects associated with it is quite frightening. It can cause weight gain, metabolic syndrome, diabetes, over-sedation, and carries with it the risk of tardive dyskinesia, a movement disorder that can become permanent even after the drug is discontinued.
AstraZeneca, Seroquel's manufacturer, is seeking FDA approval for using Seroquel in the treatment of generalized anxiety disorder.
Talk about using a sledgehammer on an ant.
Or in this case, on the American brain.
It disturbs me greatly that our culture should deem this acceptable.
I suppose I should not be surprised, given that worship of the Holy Dollar seems to have more converts every year than all of the traditional religious traditions combined.
Still, it's one thing for someone to be prescribed this drug for psychosis, and quite another for someone to see an ad on TV and ask for this medication from a doctor who is not a psychiatrist, and knows nothing more about the drug than what Big Pharma has deigned to share over lunch in a five-star restaurant.
Where are the checks and balances in this system?
The whole thing makes me Nervous and Anxious.
Perhaps I need a good slug of Seroquel...
I cannot believe that any responsible doctor would prescribe an antipsychotic to people who are exhibiting what is a completely normal fear of looking ridiculous in public. Given how much importance is attached to appearance and performance in this culture, of course people are going to worry about looking stupid in front of their peers. And let's face it, public speaking is one of those activities that carries with it the very real potential for Embarrassment and Humiliation.
Seroquel is a powerful drug and the list of possible side effects associated with it is quite frightening. It can cause weight gain, metabolic syndrome, diabetes, over-sedation, and carries with it the risk of tardive dyskinesia, a movement disorder that can become permanent even after the drug is discontinued.
AstraZeneca, Seroquel's manufacturer, is seeking FDA approval for using Seroquel in the treatment of generalized anxiety disorder.
Talk about using a sledgehammer on an ant.
Or in this case, on the American brain.
It disturbs me greatly that our culture should deem this acceptable.
I suppose I should not be surprised, given that worship of the Holy Dollar seems to have more converts every year than all of the traditional religious traditions combined.
Still, it's one thing for someone to be prescribed this drug for psychosis, and quite another for someone to see an ad on TV and ask for this medication from a doctor who is not a psychiatrist, and knows nothing more about the drug than what Big Pharma has deigned to share over lunch in a five-star restaurant.
Where are the checks and balances in this system?
The whole thing makes me Nervous and Anxious.
Perhaps I need a good slug of Seroquel...
Monday, May 5, 2008
Stranger in a Strange Land
When I was a child, I didn't have words for what it was inside of me that was "different" or "wrong", but I knew that it was there. From the moment I was forced into nursery school, large groups into which I must try to fit in bewildered and frightened me.
I've never had a herd mentality, and the idea of striving all my life so that I can be like everyone else, so that I can have the "stuff" that makes everyone around me "happy" and makes me look "successful" makes me sick.
Most of the people I know who are deemed "successful" don't seem awfully happy to me.
I can't even figure out what this whacked-out culture has for a collective value system, beyond the all-important amassing and showing-off of the newest, latest, most expensive, designer "stuff."
This media-driven excuse for a culture continues to bewilder me, but now, as an adult, I can choose to avoid as much of it as possible. Why does everyone else seem content to have The Media constantly telling them who to be, what to like, what to eat, how to look, what to wear...even what's funny (laugh tracks drive me ballistic). No wonder everyone is medicated.
What happened to the quiet spaces we used to make in our lives? What happened to slowing down and taking one's time? What happened to taking a moment to just breathe, just be? What happened to forging your own path and being true to yourself, regardless of What Everyone Else Thinks?
I used to wonder if perhaps aliens had abandoned me here on this planet, and dream about the day that they would one day come back for me and take me "home." Someplace where there would be people like me. Someplace where the multibillion dollar corporations running the world wouldn't have the audacity to try to tell me who to be.
I don't wonder about the aliens anymore; I'm stuck here, and I know it. But sometimes I look up at the stars and wish things were different.
I've never had a herd mentality, and the idea of striving all my life so that I can be like everyone else, so that I can have the "stuff" that makes everyone around me "happy" and makes me look "successful" makes me sick.
Most of the people I know who are deemed "successful" don't seem awfully happy to me.
I can't even figure out what this whacked-out culture has for a collective value system, beyond the all-important amassing and showing-off of the newest, latest, most expensive, designer "stuff."
This media-driven excuse for a culture continues to bewilder me, but now, as an adult, I can choose to avoid as much of it as possible. Why does everyone else seem content to have The Media constantly telling them who to be, what to like, what to eat, how to look, what to wear...even what's funny (laugh tracks drive me ballistic). No wonder everyone is medicated.
What happened to the quiet spaces we used to make in our lives? What happened to slowing down and taking one's time? What happened to taking a moment to just breathe, just be? What happened to forging your own path and being true to yourself, regardless of What Everyone Else Thinks?
I used to wonder if perhaps aliens had abandoned me here on this planet, and dream about the day that they would one day come back for me and take me "home." Someplace where there would be people like me. Someplace where the multibillion dollar corporations running the world wouldn't have the audacity to try to tell me who to be.
I don't wonder about the aliens anymore; I'm stuck here, and I know it. But sometimes I look up at the stars and wish things were different.
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